The Conversation: The term “neurodivergent” is being used more and more often in everyday conversation, on social media and even in scientific research.

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The term “neurodivergent” is being used more and more often in everyday conversation, on social media and even in scientific research.

Neurodivergent is usually used to described a brain that works differently from what is seen as typical. For instance, it is often used to describe someone with a diagnosis of autism or ADHD.

But there’s an inherent problem with the term: it’s hard to say exactly what counts as “typical” brain function.  Our new review shows that even academics can’t agree on what neurodivergent actually means, or which clinical diagnoses it covers.

We looked at 134 scientific studies that included over 151,000 participants. The majority of this research was conducted in the UK and US. These studies mainly looked at people who were labelled “neurodivergent” or “neurodiverse”, exploring their education and work experiences, mental health, identity and social connection, diagnosis and traits, support, and the views of families and caregivers.

Our aim was to find out what specific diagnoses, if any, were reported in relation to the terms “neurodivergent” and “neurodiverse”.

We found almost 20 different diagnoses linked to neurodivergence and neurodiversity. Autism and ADHD came up most often, followed by dyslexia and dyspraxia. However, anxiety, depression, post-traumatic stress disorder and neurological disorders such as stroke or traumatic brain injury also appeared.

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One in five studies used the words without naming any diagnosis at all. A third simply asked people to self-identify as “neurodivergent”, rather than using a formal clinical assessment.

Some studies mixed up “neurodivergent” and “neurodiverse” – even though the two mean different things.

Neurodiversity refers to the natural variation in how people’s brains work, think and learn. Because of this, it’s incorrect to call one person “neurodiverse” or “with a neurodiversity”. Neurodiversity describes a group, not any one person, so it’s correct to say our society is neurodiverse.

Neurodivergent, on the other hand, describes one person whose brain works differently from what is considered typical. But the problem is that currently, nobody agrees on how to define or measure this difference.

Although doctors can use established criteria to test for specific conditions such as ADHD or autism, there’s no test that can separate what is “neurodivergent” from what is “neurotypical”.

Why these findings are important

For decades, people with neurodevelopmental conditions – especially autistic people – have campaigned for better rights and inclusion. As part of the neurodiversity movement, they called for terminology that they deemed would be kinder to describe conditions such as autism, ADHD and dyslexia.

A person wearing an autism infinity symbol rainbow pin on the strap of their backpack.
The terms grew out of the neurodiversity movement’s campaigns. Veja/ Shutterstock

Words such as neurodiverse and neurodivergent grew out of this campaign, and are now used in schools, workplaces and the media. People often use them instead of naming specific diagnoses.

Conditions such as autism and ADHD are grouped together in the Diagnostic and Statistical Manual of Mental Disorders (DSM) – the manual psychiatrists use to reach a diagnosis for a specific person – as they often overlap. Many people with ADHD are also autistic, for example.

But each condition has its own specific clinical features and diagnostic criteria. This is why using “neurodivergent” as a catch-all term, even in research, can cause problems.

The support that helps an autistic person is not the same as the support that helps someone with anxiety. These are different conditions with different needs. Broad labels can hide this important detail.

In clinical research, the vagueness of using such a broad label as “neurodivergent” causes important problems, too. If a study only says its participants are “neurodivergent”, it’s hard to interpret the results. This particularly matters when that research later shapes clinical care.

Vague terms may cause problems for the public, as well. For example, a workplace policy built around “neurodivergence” might sound inclusive – but it can end up too broad and unhelpful if it doesn’t target specific needs.

There’s a stigma risk as well. It’s true that “everyone is neurodiverse”, since all our brains work differently. But this can inadvertently slide into “everyone is a bit neurodivergent” – and then it’s a short step into “we’re all a bit ADHD” or “a bit autistic”.

This kind of thinking is unfair for people with an established diagnosis. Their day-to-day experience is often very different from that of people without a diagnosis.

“Neurodiversity” and “neurodivergence” are useful for describing an identity and experiences that people may share. There is nothing wrong with someone saying “I think I am neurodivergent”. But in clinical research, healthcare and education, clear and recognised clinical diagnoses serve people better than catch-all labels.

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About michelleclarke2015

Life event that changes all: Horse riding accident in Zimbabwe in 1993, a fractured skull et al including bipolar anxiety, chronic fatigue …. co-morbidities (Nietzche 'He who has the reason why can deal with any how' details my health history from 1993 to date). 17th 2017 August operation for breast cancer (no indications just an appointment came from BreastCheck through the Post). Trinity College Dublin Business Economics and Social Studies (but no degree) 1997-2003; UCD 1997/1998 night classes) essays, projects, writings. Trinity Horizon Programme 1997/98 (Centre for Women Studies Trinity College Dublin/St. Patrick's Foundation (Professor McKeon) EU Horizon funded: research study of 15 women (I was one of this group and it became the cornerstone of my journey to now 2017) over 9 mth period diagnosed with depression and their reintegration into society, with special emphasis on work, arts, further education; Notes from time at Trinity Horizon Project 1997/98; Articles written for Irishhealth.com 2003/2004; St Patricks Foundation monthly lecture notes for a specific period in time; Selection of Poetry including poems written by people I know; Quotations 1998-2017; other writings mainly with theme of social justice under the heading Citizen Journalism Ireland. Letters written to friends about life in Zimbabwe; Family history including Michael Comyn KC, my grandfather, my grandmother's family, the O'Donnellan ffrench Blake-Forsters; Moral wrong: An acrimonious divorce but the real injustice was the Catholic Church granting an annulment – you can read it and make your own judgment, I have mine. Topics I have written about include annual Brain Awareness week, Mashonaland Irish Associataion in Zimbabwe, Suicide (a life sentence to those left behind); Nostalgia: Tara Hill, Co. Meath.
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